12/27/2023 0 Comments Copay accumulator legislation 2022Puerto Rico: Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado held their advocacy day at the Capitol on March 21st to discuss with lawmakers introducing legislation to create a registry and further access to health care for the blood disorder community on the island. Preparing for Washington Days and upcoming action in Harrisburg on copay accumulator adjusters, the retreat of the State’s advocacy ambassadors participated in sessions on copay accumulators and maximizers, photo and storytelling sessions, and holding meetings with legislators both in-district and in offices in Harrisburg and Washington. Pennsylvania: Both Eastern and Western Pennsylvania Bleeding Disorders Foundation’s held an advocacy ambassador retreat in Bedford Springs, Pennsylvania from March 3-5th. The action likely ended the bill’s chances for the 2023 session. Unfortunately, the bill was pulled from the agenda of a Senate committee work session March 27. 565, which would ban the use of copay accumulator adjustment policies. Approximately 25 advocates spent the day in meetings with their respective legislators to seek support for S.B. Oregon: Pacific Northwest Bleeding Disorders held its Advocacy Day in late February in Salem, Oregon. OBDC will be back in the Capitol on April 21st to meet with legislators and staff on copay accumulator legislation, and host an advocacy retreat Saturday, April 1st in Columbus. Ohio: On Friday, March 17th the Ohio Bleeding Disorders Council held a legislative breakfast for legislators and staff in the Ohio State Capitol in Columbus to educate legislators about bleeding disorders and the impact copay accumulator adjusters on those with chronic conditions. Additionally, advocates were recognized on the Senate floor by Senator Tim Kennedy (D-Buffalo) to mark March as Bleeding Disorders Awareness Month. Advocates also talked to legislators about prior authorization reform, which will be taken up by the legislature after the state budget. 901 would simplify step therapy protocols for chronic conditions, such as bleeding disorders, and has already passed the New York State Senate. New York: On Monday, March 20th, advocates from the New York State Bleeding Disorders Coalition, representing all bleeding disorders chapters in New York State, advocated in Albany for step therapy and prior authorization reform.Ī. Missouri: HB 442 was voted out of the Health and Mental Health committee and sent to the House floor where it passed with a vote of 117-38 and is now on to the senate. Michigan: On Wednesday, March 22nd, advocates from the Hemophilia Foundation of Michigan took to the Capitol to meet with legislators about copay accumulator adjusters in anticipation of the introduction of a bill to ban these practices. More than three dozen advocates met with legislators to ask for their support for a copay accumulator adjuster policy ban (AB 874) and funding for California Children Services and the Genetically Handicapped Persons Program. HB 1413 in North Dakota has passed both the House and Senate and will be considered by a conference committee.Ĭalifornia: The Hemophilia Council of California hosted its Advocacy Day March 21 in Sacramento. Bills in Colorado, Missouri, North Dakota advanced in the legislative process. New Mexico became the latest state to pass a CAAP bill (SB 51). NHF continues to support this legislation alongside our patient advocacy partners.Īll Copays Count Coalition Update: There is now copay accumulator adjuster legislation in eighteen states and the District of Columbia. This legislation would require group health plans to provide exception processes for step therapy protocols in specified cases, ensuring access to recommended treatment without unnecessary barriers. Safe Step Act Introduced: The Safe Step Act (S.652) was introduced in the Senate by Senator Lisa Murkowski (R-AK), and is currently in the Senate Committee on Health, Education, Labor, and Pensions (Senate HELP Committee). Thanks to all the advocates in the bleeding disorders community, the HELP Copays Act is amongst several pieces of legislation being considered by the 118th Congress regarding access to healthcare and treatment. 830, along with a companion bill in the Senate. As Congress heads into appropriations season, we continue to monitor the legislation and advocate for further members to sign onto H.R. 830) is now up to 29 co-sponsors, representing 18 States, Puerto Rico and Washington, DC. 830 - Federal Copay Accumulator Legislation Update: The HELP Copays Act (H.R. 830, the HELP Copays Act, and securing level funding for the federal hemophilia programs. The focus of this year was soliciting cosponsors for H.R. Washington Days Recap: Nearly 400 volunteer advocates attended Washington Days March 8-10th and participated in 235 meetings with Members of Congress and staff.
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